This is something one of his sweet nurses made for him, before leaving for vacation yesterday. She has grown an attachment to him since she has been taking care of him for the past week during the day. ;)
This morning the (good) Doctor called at 7:00 AM and told me that they had a hard night. James was put on Nitroxcide which is a separate machine that helps assist the respirator. The doctor said that James is the FIRST BABY AT PRESBY PLANO TO GO ON THIS MACHINE!!!!! That is scary and not a good feeling. The machine is to dilate the blood vessels in his lungs so that the oxygen from the respirator is absorb better. The doctor expressed his concern for James and that he is on all these support systems this late in the game. Meaning why is he a week old and not getting better. Most baby's in the NICU turn the corner after the 72 hour mark. He has come up with two reasons. 1. He is just a difficult baby that will take his own time, but we are running out of time before being an a respirator will cause long term affects. 2. Or, he has what is called a Gene Mutation which has to do with him NOT having the ability to produce his own surfactant which is a protein in the lungs, which will cause death. You cannot live without that. So, needless to say, after getting off the phone with him, I was crushed and did not know how to think straight and get my mind off they idea that my baby might not come home. So, I start to panic and talked to Jen (SIL) and she told me that it was time to start thinking of getting a second opinion. Then I started thinking of transferring him to Children's Hospital. So, Randy and I decided we needed to go up to the Hospital together and start asking a lot of questions and getting to the bottom of this all. So, we talked to his dad and he came to the hospital and helped us talk to the doctors which made us so more comfortable to have another set of ears there for us. The best thing was that Randy and John (FIL) gave him a beautiful blessing. We ALL need to keep the FAITH. So, after talking to two doctors, reviewing the x-rays, we all felt more comfortable with the care and treatments that James is receiving. We basically found out that he is not a candidate to go to Children's Hospital until these three critical days are over and there might need to be some big decisions to make if nothing is changing. He is not stable enough to be even transported to a private room, much less another hospital, now that he is on Nitro. The doctor expressed that many babies die in transport and that unless he is stable at the time of the decision in a couple of days that we need to decide if we want to take the chance to transport him, or leave him in the care of the Presb of Plano doctors hands. I did ask my favorite doctor to call in a second opinion from another Pulmonary Specialist, and he said that he was thinking of that today too. He is going to call someone in tomorrow from another hospital to assess the situation too. That made me happy. So, all in all the next couple of days are crucial and we all need to pray and hope that my baby boy pulls through this and shows us that he is a fighter. Even though this all sounds scary and upsetting, we just have to be positive and if not then we are not being a good influence for baby James.
To all those that have called me it is very hard for me to return calls, between being at the NICU and coming home and giving Reaganne and Taylor my attention and trying to keep up working to make money, and the blog that seems to comsume me late at night. I am sorry if I haven't called back. Just know that your calls and e-mails are very much appreciated and I will get back to everyone when I can start to slow down. You can all e-mail me at meganne1578@yahoo.com anytime, I have e-mail on my phone and I can respond in the NICU to those, but I cannot talk on the phone, and by the time I get home the last thing I want to do is talk on the phone and have the kids over hear me. We love you all and keep baby James in your prayers.
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